Thanks to the suggestion of our partnership team, we are opening this forum so that survivors and families can openly discuss our challenges. It is a brave experiment and we encourage you to take part.
Let’s get real. Stroke is a horrible thing. It disrupts and devastates our life. Yes, good things can come out of stroke just like very good things come out of people fighting Hurricane Katrina. But that does not turn Hurricane Katrina into a blessing.
The following are encouraged:
1. Openly share your challenges. Feel free to discuss the challenges stroke has brought on to you personally: loss of job, change in relationship, devastation to self confidence and many more.
Or things impacting you physically and psychologically such as anxiety, lack of sleep, mobility and physical challenges.
It is okay to tell everyone how hard it has been to you.
2. Feel free to make a complaint against things that need to improve: lack of post discharge support, dismissive professionals and lack of appreciation of what survivors are going through.
The following are not encouraged:
1. Personal attacks. Even if you sincerely hate someone, it is not a good practice to come here and complain about that person every 4 hours.
2. Promoting religious, political or racial bias. And please do not take this forum as a place to recruit new members for your church or mosque, or the political party you want to vote for.
3. Spreading self-destructive plans.
We want everyone to use this forum to express ourselves as much as possible. Every survivor is going through a remarkable journey dealing with frustration in every waking minute. Positive thinking often begins with letting out what is negative inside you. And you will see you are not alone.
Honesty and candor do not equate to negativity. No one should be judged that way.
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