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Elaine Bene

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    • Elaine Bene
      Participant

      We are ready for the challenge!

      Sent from my iPhone

    • Elaine Bene
      Participant

      How to get started to learn mindfulness?

    • Elaine Bene
      Participant

      Joyce, thanks for bringing this up.

      Stroke causes so many inconvenient changes to our life.

      How often do we hear “you need to exercise more” and “drink a lot of water”? Great advice. People mean well.

      But how much does such advice help? Unfortunately not much.

      We would love to return to gym and backpack on the hiking trails on a regular basis. Nothing brings us more joy than getting back to the old exercises or active life styles before stroke. Yet, this is no longer possible to many of us. Instead of talking about the great benefits of exercises, we need discussions on what if we can not exercise? What if drinking a lot of water could lead to something we do not want? At least, we find ourselves not alone when dealing with these issues.

      By the way, your blogs are beautiful.

    • Elaine Bene
      Participant

      There were many things that “went away” over the time for me:

      1. ataxia
      2. dysphagia, hoarse throat and swallow disorder.
      3. Phlegm.
      4. Double vision.

      It was really scary that I did not know if things would truly get better. There was no treatment. No drug. Doctors did not know if things would even improve.

      I got more assurance from Chinese acupuncture doctors. Because many treat survivors for a long time, they could tell me that so and so symptoms over the time will get better.

    • Elaine Bene
      Participant

      Ataxia is scary. And doctors told me that there is no specific treatment for it. “It just naturally gets better”. Luckily for me that was the case. I had no control over my arms and legs. They went all over the place. Coordination was out of the question. My guess is Ataxia had a lot to do with inflammation. In my case, as soon as acupuncture put my phlegm and other issues under control, ataxia started to fade away.

      If I were to name 3 things suck most with stroke, they are aphasia, ataxia and dysphagia.

    • Elaine Bene
      Participant

      Interesting stuff!

    • Elaine Bene
      Participant

      Great topic. Thanks for sharing!

    • Elaine Bene
      Participant

      Robyn, among the things you have done, what do you think has been the most helpful?

    • Elaine Bene
      Participant

      I wonder what is causing the burnout.

    • Elaine Bene
      Participant

      Great point!

      Sent from Yahoo Mail for iPhone

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Elaine Bene

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Active 4 months ago