- For Caregivers
- Adult Care
- For Researchers
- Find A Support Organization
- US NW Pacific
- US Southeast
- US Other
- South Africa
- Find Survivors
- First 6 Months
- Memory loss
- "Eric Dodge thread"
- Our Tuesday "Bus Station" meeting
- Can expressive aphasia improve over time? I'm asking for my brother, he is 17 years old and he had his stroke on the 21st of August, the stroke affected his right side and the opposite side of his brain. so he can't speak he uses gestures to respond and his right side is not working.
- Challenges After Leaving the Hospital
- A few things about using the Strokefocus Forum
- Real Challenges
- As a separate note, in case you do not want to receive emails.
- How do we find support from organizations
- Stroke prevention
- good morning I still have cramps on my hands
- recovery after 5 yrs.
- Palliative care for Stroke Survivors and their families in South Africa
- What's your best hack?
- International Stroke Day
- Am I too sensitive?
- finding work opportunities
- Nerve pain
- Accepted? Or Tolerated?
- Kids will play a very big role
- Kids are the key
- First 6 months is crucial
- Guilt is my concern with the stroke
- Let's get real
- Stroke hereditary?
- Looking for Love
- Aphasia: A loss of words, not thoughts
- Discs for the car
- Caregiver post
- Care Giving
- Please help me find a job as a caregiver I am a quliefied certified caregiver…
- Seeking employment
- Support group
- Stroke Help and Wheelchair
- Get involve and engange with stroke support organization
- Anyone from Zambia?
- Occupational Therapy Around Chatsworth Durban KZN
- Occupational Therapy Around Chatsworth
- Issues of the mind.....
- Arm and Leg mobility
- Child supporting parent
- Arm and Leg mobility
- Therapy options
- Disability Benefits options
- Staying positivr post STROKE
- Staying positivr post STROKE
- The new Dating forum
- Disability Benefits
- New Products
- First 6 Months
- Ask Pros
- Physical Therapists
- Occup. Therapists
- Speech Therapists
- Holistic Medicine
- Vision Specialists
- Social Workers
November 6, 2021 at 1:15 am #41367
This year, global Int. Stroke Day was a real disappointment for me, or rather, perhaps reality finally set in, that the day is certainly not at all about survivors. I found the day was used as a marketing opportunity by academics, hospital groups, rehab centers and pharmas to raise awareness about stroke, knowing the signs FAST / BEFAST, causes of stroke, life style choices, prevention and whatever new medical procedure or treatment has been developed. What I’m trying to say is that no attention is given to the survivors and their families for the battles or struggles they have overcome, or NOT overcome. I feel survivors need a day where they are the focus, were they are given acknowledgement for their achievement, along side their carers, a day when they are the hero’s, not the victim….a day when survivors and carers are told, ‘Hey, you have overcome and you gonna be okay, everything’s going to workout!’ Am I being too sensitive?
November 26, 2022 at 10:42 am
I will borrow words of my fellow survivor and add a bit of some other
dimensions. Unless there will be global political will we shall remain
biblical lepers. We need support from our respective governments unlike
what is obtaining on ground
November 26, 2022 at 7:12 am
No you are not being too sensitive. Stroke triumphants do need to be applauded for moving through and thriving after a stroke experience. Unless a person has moved through a stroke experience other people have no idea what it is like to successfully survive and thrive…..Kudos to you!!!
November 25, 2022 at 10:12 pm
thank you George,although I believe whilst I agree,your sensativity meter definitely needs more buffering,having said that you as our fearless leader we can change it to more inline with your expectations.
November 25, 2022 at 10:05 pm
you are correct survivors needs a week will bring more awareness you are not sensitive at all this is a reality we are facing with our family and care givers,how can we make it better
November 10, 2021 at 11:55 am
This is definitely worth it, I think the name just highlights survivors directly. Most of us needed to know after our experience that others have walked this path, adapted and thrived after stroke. Life after experiencing stroke must be encouraged, we humans and lean on each other. In my language we have a proverb “umuntu, ngumuntu ngabantu” ( I’m because we are)a beautiful bond of sharing which connects us. I definitely like your suggestion Joyce. Thanks George for sharing your feelings and thoughts, it has brought a great idea for us.
November 8, 2021 at 3:26 am
Thank you for your support.
The Stroke Survivor Foundation has already begun doing some research into
what is required. Once we understand the process and procedure, we will have
to identify a date most suitable and with least competition from other
possible causes and/or public/religious holidays etc.
I will feedback to this particular topic and forum with any and all updates.
November 8, 2021 at 3:11 am
#Hi George and hi everyone,
George, I hear you on this topic. I am with you and we have the right to be
heard. Dedicate a day internationally to survivors. How do we go about
doing it, procedurally?
November 6, 2021 at 10:46 am
Exactly, Kele! With the narrative changed, we would really make an impact.
November 6, 2021 at 4:41 am
By the way, if you want any help promoting, I dabbled in Public Relations
for a small portion of my career.
November 6, 2021 at 3:46 am
So how about self-declaring International Stroke Survivor Day! Here in
America, if there’s something so trivial as Sandwich Day, just go ahead and
make it happen! Choose a day and month and voila! International Stroke
Survivor Day is on the calendar! Mission accomplished!
November 6, 2021 at 3:36 am
I know we all need support and encouragement, it is good that we have this forum to get our thoughts out there. But no one can encourage someone who has not made the effort to pick them selves up. You can not look at what other professional groups put out there they are seeking money and they need to try to convince people that sending that money will impact the people they supposedly serve in order to get that money. However, every survivor needs to find it within themselves to continue doing the best they can in order to find true encouragement. Forgive the professionals they think that they have answers to something they have no truly full understanding of, they think enough money will solve problems. On the other hand the truth of what you feel is only fully known by you and no matter how loud you scream or complain no one other than you can really feel it. Other survivors know that feeling of helplessness, but they also can be negatively effected by someone who should be an example of how to survive blaming others. All survivors must understand god gave you the ability to give power to anything you choose so that if you choose wisely you will have peace and can encourage each other to find pease. Jesus said it is not that enters you that corrupts you, it is what comes from you. Find your peace by accepting what’s is no one can change it but you can make the best of it.
Sent from my iPad
November 25, 2022 at 10:18 pm
good morning clem,I agree,recovery is up to us,a daily fight which is lifelong,but you get out what you put in.my “motto”is bring it on!I live by this motto and always have.have a lekker Saturday further,chat soon👍
November 6, 2021 at 1:31 am
No you are not overly sensitive. Survivors should be openly celebrated for their achievements.
November 25, 2022 at 10:22 pm
hi Donna,personally I celebrate surviving daily/internally ,but different strokes different files,have have a lekker Saturday further😘
- You must be logged in to reply to this topic.